Chapter 7: LGBTQ+ Health and Wellness

Introduction

The health and wellness of LGBTQ+ and other sexual minority people in the United States is influenced by many factors: access to health care and health insurance; ability for open self-disclosure with a queer-affirming health professional; knowledge about the unique health challenges of LGBTQ+ people, including disease prevention and health promotion; and a sense of self-efficacy about their health, or the confidence that they know how to live a healthy life, along with the intention, necessary knowledge, and resources to do so. According to the Institute of Medicine of the U.S. National Academy of Sciences, LGBTQ+ health can be understood through four lenses:

• Minority stress model—chronic stress that sexual and gender minorities routinely experience can contribute to physical and mental health problems.
• Life-course perspective—events at each stage of life influence subsequent stages, with LGBTQ+ people being particularly vulnerable in adolescence and young adulthood.
• Intersectionality perspective—an individual’s multiple identities and the ways they interact may compromise health so that gender and sexual identity may be complicated, for example, by racial or ethnic identity or economic status. Health disparities are already amplified among racial and ethnic minority populations, which queer sexual orientation is likely to intensify further.
• Social ecology—individuals are surrounded by spheres of influence and support, including families, friends, communities, and society, that shape self-efficacy and health.^[1]

In this chapter we keep in mind these four overlapping dimensions while exploring the following topics:

• LGBTQ+ people and the history and culture of medicine.
• Vulnerabilities of LGBTQ+ people across the lifespan and across intersectional identities (including race and ethnicity).
• Transgender people’s health.
• Guidelines for being a smart patient and health care consumer.

History and Culture of Medicine and LGBTQ+ People

LGBTQ+ people often have complicated relationships with medicine, and these relationships have histories that extend back to the 1800s. The philosopher Michel Foucault famously (and controversially) suggested that queer sexualities in the ancient and medieval worlds were judged in an exclusively legal or religious category but that in the 1800s sexualities became medicalized.^[2] From this perspective, in historical terms, LGBTQ+ people in Western society went from being criminal or immoral to being mentally ill.

Viewed as a pathology rather than just a moral failing or legal violation, queer sexuality became the object of medicine’s study: What is its cause, and if it is a pathology or disease, how might it be cured? This moment occurred in the second half of the 1800s when medical research and practice had absorbed enormous cultural power and authority through its first modern groundbreaking discoveries, including the development of germ theory, surgical antisepsis, and anesthesia. All things seemed possible to medicine.

Developing Terminology

The term homosexual appears to have been coined by the Austro-Hungarian journalist Karl-Maria Kertbeny (1824–1882) (figure 7.1) in an 1869 pamphlet criticizing a German anti-sodomy law.^[3] The term was taken up by the psychiatrist Richard von Krafft-Ebing (1840–1902) in his Psychopathia Sexualis [Mental illnesses related to sex] (1886).^[4] The term entered English through a translation of Krafft-Ebing’s work and through the advocacy writing of John Addington Symonds and Havelock Ellis in England. The term bisexual, in contrast, had been used in botany since the 1700s to denote plants with both male and female anatomy (also referred to as hermaphrodite), but was adapted in the late 1800s to denote a person with roughly equivalent attraction to men and women. The term intersex, used as a synonym for homosexual, was adapted in the early twentieth century from biology, where it indicated the possession of both female and male anatomical features, and it is now the term frequently used by people born with ambiguous genitalia.

Theories of Sexual Variation

These attempts to name this unique species of human beings and diagnose what they viewed as sexual pathology, or disease, led physicians, sexologists, and psychiatrists to a search for causality and treatment. David F. Greenberg identifies five explanatory categories that emerged over time: homosexuality as innate, degeneracy theory, Darwinian theory, psychoanalytic theory, and behaviorism.^[5]

Nineteenth-century advances in embryology and genetics may have influenced what had often been an assumption since Greco-Roman antiquity that sexuality was innate, leading to a theory of the third sex, which was also encouraged by movements for social tolerance and legal reform. In contrast, proponents of degeneracy theory viewed homosexuality and bisexuality as akin to criminality, alcoholism, and drug addiction. Degeneracy suggests that the gene pool had become exhausted as a result of modern life or personal vice and indulgence inherited from a previous generation. Similarly, the application of Darwinian theory evaluated people and behavior, characterizing homosexual and bisexual people as evolutionary throwbacks, akin to “primitive” peoples whom Europeans had colonized throughout the world and whose sexual mores were at odds with Western notions of morality.

Perhaps no theories of sexual identity have been more influential than psychoanalytic theory and behaviorism. Although various psychodynamic theories were espoused in the late 1800s and early 1900s, Sigmund Freud, often called the father of modern psychoanalysis, postulated that infants are “polymorphous perverse,” deriving pleasure from many parts of their body and regardless of gender. The function of society, for Freud, was to channel pleasure into an acceptable, productive heterosexuality. However, traumas or inner conflicts could arrest a child’s psychosexual development or cause a young adult to regress into homosexuality (for example, an overly attentive mother and distant father for boys). The role of psychotherapy was to expose the trauma or conflict and allow growth toward heterosexuality to resume. Nonetheless, Freud was less inclined to view homosexuality as a sickness than as a form of psychosexual immaturity. Behaviorism, in contrast, has been inclined to view sexual orientation generally as a learned behavior, which means that homosexuality can be unlearned.^[6] Whereas psychoanalytic theory prefers talk therapy, behaviorism has tended to employ rewards and punishments to “reprogram” sexual behavior, including electroshocks and hormone injections. So-called gay conversion therapy, the subject of increasing legal rejection by states today, has a decades-old history.

Emerging Self-Care

Throughout the twentieth century the medical establishment in the United States generally considered queer sexualities as mental illnesses. However, early descriptive research by Alfred Kinsey and his colleagues disclosed both a surprising number of self-identified LGB persons and a fluid spectrum of human sexual response. What they called a “heterosexual-homosexual rating scale” identified a range from exclusively heterosexual (0) to equally heterosexual and homosexual (3), otherwise known as bisexual, to exclusively homosexual (6). This scale was applied to each individual according to the participants’ sexual behavior and psychic reactions—that is, thoughts, feelings, and fantasies.^[7]

It is no wonder, then, that by the 1960s and the emergence of the gay rights movement, many LGBTQ+ people had come to distrust the medical establishment. Health care providers often either exhibited hostility or acknowledged ignorance about the unique health concerns of LGBTQ+ people.^[8] Many gay men and lesbians in particular had come to reject the notion of their sexual orientation as a pathology and had begun to seek the rare health care providers who were affirming of their sexualities. Feminists and the women’s movement had shown how this might be done with health collectives, like the one in Boston that produced the book Our Bodies, Ourselves, part of a movement in the United States in the late 1960s and early 1970s for homegrown self-published self-help books.^[9] One groundbreaking book for queer people included chapters on alcohol safety, venereal diseases (now called sexually transmitted infections), and other health topics, many of which had been previously published in local queer newspapers and magazines.^[10] In major urban areas, health clinics for LGBTQ+ people formed to serve this vulnerable population.^[11]

When the first published reports of an infectious epidemic that would come to be called acquired immune deficiency syndrome (AIDS) appeared in 1981, queer communities were wary of uncertain medical explanations and advice, aware of the stigmatization of their sexualities that was now exacerbated by AIDS, but also more prepared for community organizing around health concerns. Grassroots organizations at least in large or midsize metropolitan areas—like New York’s GMHC (Gay Men’s Health Crisis) and Tidewater AIDS Crisis Taskforce of Norfolk, Virginia—advocated, educated, and cared for people infected with HIV. Chapters of the AIDS Coalition to Unleash Power (ACT UP) blossomed in cities, particularly New York and San Francisco, bringing direct-action demonstrations against government and medical inaction. AIDS activists changed the ways that the U.S. medical establishment conducted research and delivered care by insisting on the participation of people living with AIDS in decisions about drug approvals and treatment.^[12]

Medicine and the History of Transgender Care

The celebrity of Christine Jorgensen (figure 7.2), who began her physical transition from male to female in the early 1950s and who led a bold public life as a writer, lecturer, and entertainer, brought the transgender experience to wide attention.^[13] Beginning in 1965, Johns Hopkins University in Baltimore was the first American medical school to study and perform what was called sex reassignment surgery (now more aptly known as gender-affirming surgery), or in popular parlance, sex change operations. However, despite this pioneering role, the Johns Hopkins clinic ended the practice in 1978, in part because of flawed transphobic follow-up research. Only recently has it resumed its transgender and gender-affirming care.^[14] In the first decade and a half of the twenty-first century, almost forty thousand patients sought transgender care, with 11 percent of them seeking gender-affirming surgery and an increasing percentage using health insurance rather than out-of-pocket payments as had been typical in the past.^[15]

Medicine’s relationship to LGBTQ+ people has been complicated enough over the last century and a half, but considering a person’s place in the human lifespan and intersectional identities makes it even more so. We explore these considerations next.

Vulnerabilities across the Lifespan and across Intersectional Identities

Decades of research have indicated that LGBTQ+ populations face a disproportionate burden of health problems and stigma, including higher levels of depression, lower self-esteem, compromised academic achievement, and more substance use.^[16] These disparities are documented across the lifespan, from childhood to young adulthood and even into late adulthood.^[17] Researchers have identified minority stress, or sexuality- and gender-related stressors, as the mechanism through which these health problems can be explained.^[18]

Minority Stress Model

Being a marginalized or minority person in a society produces personal and group stress, sometimes invisible but always with both psychological and physiological effects. The Institute of Medicine report proposed the minority stress model as a strong framework to understand health disparities among LGBTQ+ populations. In particular, the report highlights how minority stress has been found to affect the day-to-day lives and health of LGBTQ+ individuals across the lifespan.^[19] This minority stress can be distal (e.g., victimization from others because of a sexual minority identity) or proximal (e.g., concealment of sexual identity, internalized homophobia). Therefore, strategies to promote health and well-being should consider multiple types of stressors.

Intersecting Identities

In addition to minority stress, the Institute of Medicine recommended a focus on intersectionality as an imperative consideration for researchers, clinicians, and other stakeholders invested in LGBTQ+ health.^[20] Intersectionality at its broadest meaning proposes that race, ethnicity, ability status, and other oppressed identities can amplify LGBTQ+ health issues.^[21] In addition to being aware how oppressed and intersecting identities can compound health outcomes, researchers are increasingly measuring and considering all demographic characteristics among LGBTQ+ youth to better understand how multiple identities (e.g., being Black, gay, and residing in the U.S. South) might be related to the holistic LGBTQ+ experience. For example, a study collected data from 17,112 LGBTQ+ youth across the United States and documented twenty-six distinct sexual and gender identities.^[22] Additionally, youth who were transgender and nonbinary were more likely than cisgender youth to identify with an “emerging sexual identity label,” such as pansexual (figure 7.3). These patterns also differed by ethnoracial identity, suggesting that youth of color are using different terms, compared with their white counterparts, to describe their sexual attractions and gender identities. The next step is to better understand how intersecting identities may be uniquely associated with health outcomes, given that a large focus of research has focused on disease prevention and health promotion among LGBTQ+ populations. The Institute of Medicine also points out that LGBTQ+ couples and their children are less likely to have adequate health insurance, which is usually provided through employers, especially when they are unemployed or underemployed.^[23]

Disease Prevention and Health Promotion

Recent research on health disparities finds that the gap in disparities between some LGBTQ+ and heterosexual youth continues to grow across a number of outcomes.^[24] Emerging research has moved beyond documenting these disparities to examining the risk and protective factors that may help prevent disease and promote health among LGBTQ+ people.

With respect to LGBTQ+ youth, research has consistently documented family and parent support to be the strongest buffer against negative health experiences, above and beyond other support systems. In addition to families, a number of other support systems are known to protect against negative health (and thus disease later in life), such as school-based clubs, supportive peers, and supportive policies and laws.^[25] The protective role of these support systems extends into young adulthood and across a lifespan, but the magnitude by which certain supports (e.g., school peers) affect LGBTQ+ health may change.

Among older LGBTQ+ adults, there has been a strong focus on sexually transmitted disease and HIV prevention. Given HIV’s disproportionate burdens on the LGBTQ+ community, and in particular the disproportionate impact on African American men who have sex with men, research funding and attention have focused on reducing this stark disparity (figure 7.4). Medical advancements in preventing HIV have proliferated in the recent past, and one method in particular, pre-exposure prophylaxis (PrEP), has been the focus of many studies. However, a vexing dilemma exists: although there is a drug that can prevent HIV infection, why aren’t more men who have sex with men (and LGBTQ+ individuals) taking the drug? After all, Tony Kirby and Michelle Thornber-Dunwell find that the rates of HIV acquisition in the United States are still high and similar to the rates in other countries. Researchers continue to consider how stigma, a history of medical mistrust, and other factors might thwart the uptake of lifesaving drugs that prevent HIV among LGBTQ+ populations.^[26]

See table 7.1 for a summary of the critical health concerns over the life course.

Table 7.1 Health concerns across the lifespan

Life stage	Health concerns
Adolescence	HIV infection, particularly among Black or Latino men who have sex with men; depression, suicidal ideation, suicide attempts; smoking, alcohol, substance use; homelessness; violence, bullying, harassment
Early to midadulthood	Mood and anxiety disorders; using preventive health resources less frequently; smoking, alcohol, substance use
Later adulthood	Long-term hormone use among transgender people; HIV infection; stigma, discrimination, violence in health care institutions (e.g., nursing homes). The research literature also suggests that older LGBTQ+ adults may possess a high degree of resilience, having weathered the difficulties of adolescence and earlier adulthood

Source: Institute of Medicine, The Health of Lesbian, Gay, Bisexual, and Transgender People: Building a Foundation for Better Understanding (Washington, DC: National Academies Press, 2011).

A long history of health professionals’ insensitivity or even hostility to LGBTQ+ people, as described in the beginning of this chapter, continues to have real-life consequences. Disparities are particularly evident among transgender people, who are a uniquely vulnerable population and whose health and wellness concerns we discuss next.

Transgender and Gender-Nonconforming Health Care

The transgender and gender-nonconforming community has suffered, often in silence. Numerous studies have depicted the barriers these patients face with respect to health care, which include mistreatment by health care providers and providers’ discomfort or inexperience regarding patient’s health care needs, as well as patients’ lack of adequate insurance coverage for health care services.^[27] Owing to these barriers, transgender and gender-nonconforming patients are often left to navigate health care on their own.

For example, the National Center for Transgender Equality reported that 33 percent of respondents who had seen a health care provider in the preceding year suffered at least one negative experience related to being transgender, and 23 percent of respondents did not even seek a medical provider when they needed one for fear of being mistreated. Additionally, a staggering 39 percent of respondents experienced psychological distress, and 40 percent have attempted suicide in their lifetimes, which is nearly nine times the 4.6 percent rate of the general population.^[28] Seeking routine or preventive physical and mental health care, let alone transition-related services for those who seek to transition, is difficult.

Incidence and Prevalence

Several attempts have been made to determine how many Americans identify as transgender.^[29] A 2016 estimate postulates that 0.6 percent of the population, or 1.4 million Americans, are transgender.^[30] However, the gender construct is complex, and more rigorous epidemiological studies are needed on a global scale to delineate the incidence (percentage of the population) and prevalence (total number of people) of this experience. Historically, transgender and gender-nonconforming individuals have been marginalized, and the disparities discussed earlier in this chapter may instill a sense of fear within the community, thus leading to greater difficulty in obtaining an accurate estimate. Additionally, cultural differences among societies shape the behavioral expressions of gender identities, masking gender dysphoria.^[31] For instance, certain cultures may revere and consider as sacred such gender-nonbinary behaviors, leading to less stigmatization.^[32]

Moreover, as the literature suggests, the prevalence of gender dysphoria is unknown. There has been great controversy within the transgender and gender-nonconforming community regarding this diagnosis because in earlier years the phenomenon was deemed psychopathological.^[33] On the one hand, gender nonconformity refers to “the extent to which a person’s gender identity, expression, or role differs from the cultural norms that designate for people of a particular sex.”^[34] On the other hand, gender dysphoria, first described by N. M. Fisk in 1974, is the “discomfort or distress that is caused by a discrepancy or incongruence with a person’s gender identity and that very same person’s sex that was assigned at birth.”^[35] Therefore, not every transgender and gender-nonconforming individual experiences gender dysphoria. As a result, the World Professional Association of Transgender Health released a statement in 2010 that urged the depsychopathologization of gender nonconformity worldwide.^[36] The goal of the health care professional is thus to assist transgender and gender-nonconforming patients who suffer from gender dysphoria by affirming their gender identity and collaboratively investigating the array of options that are at their disposal for expression of their gender identity.

Therapeutic Options for Transgender and Gender-Nonconforming Patients

An array of therapeutic options must be considered when collaboratively working with transgender and gender-nonconforming patients. Transition, for those who seek it, does not follow a linear model but is, rather, an individualized process based on the patient’s specific needs. Interventions and their sequence differ from person to person. A collaborative approach between the health care professional and patient is of the utmost importance. Additionally, a multidisciplinary approach, one that encompasses primary care providers, mental health clinicians, surgeons, and speech pathologists, results in the best outcomes. The following lists therapeutic options that a transgender and gender-nonconforming patient may undertake:

• Changing gender expression or role, whether living full-time or part-time in the gender expression that aligns with the current gender identity. This may involve chest binding to create a flat chest contour, padding of the hips and buttocks, genital tucking, wearing gaff underwear, or wearing a prosthesis.
• Changing a name and gender marker on identity documents.
• Seeking psychotherapy to understand and investigate the constructs of gender, such as gender identity, gender role, gender attribution, and gender expression. Psychotherapy may also address the positive or negative impacts of such feelings as stigma and address internalized transphobia, if present.
• Undergoing gender-affirming hormone therapy to either feminize or masculinize the patient’s body.
• Choosing gender-affirming surgeries to alter primary or secondary sex characteristics.
• Finding peer-support groups and community organizations that provide social support, as well as advocacy.
• Attending speech or voice and communication therapy that facilitates comfort with gender identity or expression and ameliorates the stress associated with developing verbal and nonverbal behaviors or cues when interacting with others.
• Removing hair through laser treatments, electrolysis, waxing, epilating, or shaving.

The options may seem overwhelming to review, but it is the goal of the health care professional to assist the patient through the journey, regardless of what therapeutic options the patient ultimately chooses. Access to those services requires that the transgender person live in an area where they are available and have adequate health insurance, which is usually provided by employers. Transgender people, particularly trans people of color, however, are less likely to be employed than cisgender LGB people, thus are often deprived of the health insurance that they need.

Criteria for Gender-Affirming Hormone Therapy

Gender-affirming hormone therapy consists of the administration of exogenous endocrine agents to elicit feminizing or masculinizing changes. While some transgender and gender-nonconforming patients may seek maximum changes, others may be content with a more androgynous presentation. The fluidity of this construct should not be minimized, because hormonal therapy must be individualized on the basis of a patient’s goals and thorough understanding of the risks and benefits of medications and an in-depth review of a patient’s other existing medical conditions. Furthermore, initiation of hormonal therapy may

be undertaken after a psychosocial assessment has been conducted and informed consent has been obtained by a qualified health professional. . . . The criteria for gender-affirming hormone therapy are as follows:

1. Persistent, well-documented gender dysphoria;
2. Capacity to make a fully informed decision and to consent for treatment;
3. Age of majority in a given country . . . ;
4. If significant medical or mental health concerns are present, they must be reasonably well-controlled.^[37]

Common agents used for feminization regimens are estrogen and antiandrogens, and the common agent used for masculinization regimens is testosterone. Progestins are controversial in feminizing regimens, and clinicians can cite only anecdotal evidence for the hormone’s use in full breast development. A clinical comparison of feminizing regimens with and without the use of progestins found that these agents did not enhance breast growth or reduce serum levels of free testosterone.^[38] Additionally, progestins’ adverse effects outweigh their benefits because depression, weight gain, and lipid changes have been seen with these agents.^[39] However, progestins do play a role in masculinizing regimens and when used in early stages of hormonal therapy assist in the cessation of menses.

Physical Effects of Gender-Affirming Hormone Therapy

A thorough discussion regarding the physical effects of gender-affirming hormone therapy between the health care professional and the patient is warranted. Using endocrine agents to achieve congruency with a patient’s gender identity will induce physical changes, which may be reversible or irreversible. Most physical changes occur within two years, with several studies estimating the process to span five years. The length of time attributed to such changes is unique to each individual. Tables 7.2 and 7.3 outline the estimated effects and the course of such changes.

Table 7.2 Effects of gender-affirming hormone therapy with masculinizing agents

Effect	Onset (months)
Acne	1–6
Facial and body hair growth	6–12
Scalp hair loss	6–12
Increased muscle mass	6–12
Fat redistribution	1–6
Cessation of menses	1–6
Clitoral enlargement	1–6
Vaginal atrophy	1–6
Deepening of voice	6–12

Table 7.3 Effects of gender-affirming hormone therapy with feminizing agents

Effect	Onset (months)
Softening of the skin	3–6
Decreased libido	1–3
Decreased spontaneous erections	1–3
Decreased muscle mass	3–6
Decreased testicular volume	6–12
Decreased terminal hair growth	6–12
Breast growth	3–6
Fat redistribution	3–6
Voice changes	None

Because of the masculinizing or feminizing effects of endocrine agents used in transitioning, the coming out process for someone who identifies as transgender or gender nonconforming may be challenging and may differ from the coming out process of LGB individuals. LGB individuals may keep their sexual orientation concealed, but the effects of hormonal agents on the transgender person are noticeable to others. Transgender and gender-nonconforming individuals may have to come out during social interactions, unless they wish to relocate to a new area, where they may choose not to disclose their transgender identity, often referred to in the community as “living stealth.”

The coming out process may seem daunting to endure and may encompass numerous challenges. Those lacking support or who have been “mistreated, harassed, marginalized, defined by surgical status, or repeatedly asked probing personal questions may . . . [experience] significant distress.”^[40] Additionally, the persistent and chronic nature of these microaggressions have led some researchers to apply the minority stress model to transgender and gender-nonconforming individuals.^[41] Such experiences create a potential for increase in the rate of certain health care conditions, such as clinical depression and anxiety and their somatization, or conversion to physical symptoms.^[42]

Transgender people, like all other LGBTQ+ people, need to learn how to become informed consumers of health care services and make informed choices about their physical and mental well-being. The next section explains how to become such a knowledgeable patient.

Being a Smart Patient and Health Care Consumer

As noted throughout this chapter, LGBTQ+ individuals encounter more discrimination in health care compared with the heterosexual population. While some evidence shows that negative experiences for some LGBTQ+ persons are decreasing, discrimination continues. Lack of health care provider education in culturally inclusive LGBTQ+ communication and care is frequently noted as a contributing factor for health professionals’ discrimination. The shortage of educated practitioners and amount of practitioner bias have caused many LGBTQ+ persons to either delay or avoid seeking health care services. A primary reason attributed for this delay or avoidance is that LGBTQ+ individuals often feel invisible to their providers and have experienced discrimination in previous encounters.^[43]

Other factors also contribute to the negative health care experiences of LGBTQ+ individuals. A provider whose value system, religious beliefs, and political party affiliation are hostile to LGBTQ+ people may have difficulty providing the respectful and affirming care that LGBTQ+ persons are entitled to. For LGBTQ+ people to receive respectful and culturally inclusive, patient-centered care from their providers, they must take it on themselves to be informed health care consumers, practice self-advocacy, and shop wisely for providers who are LGBTQ+ affirming. Self-advocacy is essential to optimizing access to quality health services.

Health Care Providers

The teaching of medical and nursing students about health issues unique to the LGBTQ+ population is inconsistent among education programs for health care providers. An emerging body of research finds a need for more education to better meet the requirements of LGBTQ+ patients. In one study, for example, U.S. medical schools were found to provide only an average of five hours of LGBTQ+ education throughout the curriculum. Baccalaureate nursing programs in another study spent only an average of a little over two hours teaching content about LGBTQ+ health topics. Less is known about the extent to which other health provider education programs cover this content. During a health care clinical experience, LGBTQ+ individuals often encounter health care providers who lack a basic understanding of LGBTQ+ cultures, terminology, and culturally inclusive care.^[44]

Locating a health care facility that affirms LGBTQ+ people can be difficult but is not impossible. Some national organizations provide resources for LGBTQ+ persons and health care providers. For example, the Human Rights Campaign, the largest national LGBTQ+ civil rights organization with over three million members, has a benchmarking tool, the Healthcare Equality Index, to recognize the health care facilities with policies and procedures for equity and inclusion of LGBTQ+ patients, visitors, and employees. Health care facilities evaluated by the index are available in its directory. An agency must reapply every year to demonstrate that it meets the current standards outlined by the Human Rights Campaign.^[45]

Another organization, GLMA (Gay and Lesbian Medical Association), advances health care equality for LGBTQ+ people and has an extensive directory of health care providers across the United States that are LGBTQ+ affirming. The GLMA published guidelines that offer recommendations for practitioners to consider when caring for LGBTQ+ clients. The National LGBT Health Education Center, a program of the Fenway Institute, also has excellent resources to help educate providers.^[46] Both organizations provide valuable resources and are worth mentioning to a provider who lacks sufficient knowledge to provide culturally inclusive care for LGBTQ+ persons. Organizations and coalitions that support LGBTQ+ health are listed in table 7.4. All provide free publications and resources for the LGBTQ+ person and health care providers.

Table 7.4 LGBTQ+ education and advocacy organizations

GLMA Health Professionals Advancing LGBTQ Equality	http://www.glma.org/
Association of Lesbian, Gay, Bisexual, Transgender Addiction Professionals and Their Allies	http://www.nalgap.org/
World Professional Association for Transgender Health	https://www.wpath.org/
Center of Excellence for Transgender Health	http://transhealth.ucsf.edu/
National LGBT Cancer Network	https://cancer-network.org/
Trevor Project	https://www.thetrevorproject.org/
CenterLink: Community of LGBT Centers	https://www.lgbtcenters.org/
Fenway Health	https://fenwayhealth.org/the-fenway-institute/
Howard Brown Health	https://howardbrown.org/
Los Angeles LGBT Center	https://lalgbtcenter.org/
Mazzoni Center LGBTQ Health and Well-Being	https://www.mazzonicenter.org/
Callen-Lorde	https://callen-lorde.org/
LGBT Health Link	https://www.lgbthealthlink.org/

Informed Health Care Consumers

When navigating a system in which not all providers understand or practice care that includes LGBTQ+ people, LGBTQ+ individuals need to know what questions to ask when visiting their provider. Although it is important to be true to yourself and disclose your sexual identity to your provider so you can receive the most holistic care possible, not all LGBTQ+ persons feel comfortable disclosing this information, particularly to a new health care provider with whom they have not yet established a trusting relationship. The Institute of Medicine has recommended including sexual orientation and gender identity data in electronic health records so that more health care facilities will ask patients for this information.^[47] Ultimately, however, LGBTQ+ persons must decide for themselves when and to whom to disclose their LGBTQ+ identity.

Before visiting a provider, consider calling the office to ask if they provide inclusive care for LGBTQ+ patients. Bring a friend or partner to the visit for support if you are uncomfortable meeting with the health care provider. Health care providers must adhere to laws, policies, and ethical codes to keep your information private. Although a health care provider may ask about sexual orientation and gender identity, LGBTQ+ persons also have the right to request that the provider not enter their sexual orientation and gender identity into the medical record.

Paying Attention to Special Health Issues

Providers must understand health care issues common in the LGBTQ+ population and explore whether their patients have any of these risk factors. GLMA has created ten resource sheets for LGBTQ+ persons, each one addressing one of the top health concerns to discuss with a health care provider. Although not all these health issues apply to every person, it is essential to be aware that these health topics are more common among LGBTQ+ people. Several health topics are relevant to all LGBTQ+ groups, and others pertain more to one group. For example, research has identified that depression, tobacco and alcohol use, sexually transmitted diseases (including human papillomavirus and HIV/AIDS), and certain cancers are greater health risks in the LGBTQ+ population. Moreover, the risk of illicit use of injectable silicone is a more significant concern among transgender women. Other health issues are more common within certain groups, such as breast and gynecological cancers among lesbians and male-to-female transgender persons. In addition to the risk of HIV/AIDS among men who have sex with men, they also have a higher incidence of and mortality from prostate, anal, and colon cancer.^[48]

Minimizing risk factors for these acute and chronic illnesses is essential to maintaining health. The LGBT Health Link is a network for health equity and offers very practical advice for things that LGBTQ+ people can do to improve their wellness. Recommendations include how to search for insurance options, practice preventive care, seek mental health support, adopt a healthier lifestyle, and practice safer sex.^[49]

The resources provided in this section support LGBTQ+ individuals to advocate for themselves when seeking health care services, particularly from providers who are not well educated about LGBTQ+ health issues or who do not demonstrate culturally inclusive and affirming behaviors. Although health care providers are responsible for establishing a trusting relationship with their patients, this does not consistently occur in every health care setting. When a health care provider demonstrates genuine concern and respect for an LGBTQ+ individual in a practice not restricted to a fifteen-minute office visit, then there is greater opportunity for individualized, holistic, patient-centered care.

Becoming a smarter LGBTQ+ health consumer requires being aware of the community’s complex history with medicine, understanding the unique health issues involved, and recognizing health risks and changes that occur over the course of life.

Research Resources

Compiled by Stephen Stratton

• Discuss: Choose one or two resources listed in this chapter, and discuss them in relation to what you have learned about LGBTQ+ health and wellness.
• Present: Choose a key topic or event found in this chapter. Then locate one or two resources from the “Quick Dip” and “Deep Dive” sections and develop a presentation for the class. Explain the significance of the topic, and provide additional details that support your explanation.
• Create: What idea, person, or event from this chapter really moved you? Do more research on that idea, person, or event based on the resources in this chapter. Then, create your own artistic response. Consider writing a poem, drawing a picture, or editing a photograph in a way that demonstrates both what you have learned and how you feel about the issue or person.
• Debate: Find a partner or split into groups, and choose a topic, idea, or controversy from this chapter. Have each partner or group present an opposing perspective on it. Use at least two of the resources in this chapter to support your argument.

Quick Dip: Online Resources

“Accessing Sexual Health Information Online: Use, Motivations, and Consequences for Youth with Different Sexual Orientations,” by Kimberly J. Mitchell, Michele L. Ybarra, Josephine D. Korchmaros, and Joseph G. Kosciw

Nearly 80 percent of LGBTQ+ youth in an extensive 2014 survey published in Health Education Research (volume 29; https://doi.org/10.1093/her/cyt071) said they seek sexual information online, compared with less than 20 percent for their heterosexual counterparts. Discussions about how youth use the information and accuracy of the information received add to the article’s value.

Agenda 2030 for LGBTI Health and Well-Being, by the Global Forum on MSM and HIV and OutRight Action International

Agenda 2030 is the United Nations global effort on sustainability, including health and preventive education. The Global Forum on MSM and OutRight Action International wrote an excellent report in 2017 of how countries and governments can meet these 2030 goals through specific attention to LGBTQ+ people and their needs while addressing the marginalization they face based on sexual orientation, gender identity and expression, and sex characteristics. See https://msmgf.org/wp-content/uploads/2017/07/Agenda-2030-for-LGBTI-Health_July-2017.pdf.

“Health Care for Lesbians and Bisexual Women,” by Committee on Health Care for Underserved Women

This well-written opinion from practitioners, written in 2012 and reaffirmed in 2021, on gynecologic issues for women who have sex with women covers recommendations for the standards of care for women seeking care in physician’s offices, from mental health considerations to social concerns. It is the standard all ob-gyn physicians need to adhere to for their sexual and gender minority patients. See https://www.acog.org/Clinical-Guidance-and-Publications/Committee-Opinions/Committee-on-Health-Care-for-Underserved-Women/Health-Care-for-Lesbians-and-Bisexual-Women.

“HIV/AIDS,” from World Health Organization

The World Health Organization (WHO) is the United Nations organization concerned with public health issues worldwide and is both a health monitoring and data collection agency. Its “HIV/AIDS” web page (https://www.who.int/hiv/en/) provides HIV and AIDS information, and data sets, maps, reports, and charts available on the website highlight the work individual countries are doing to increase access to HIV medications and their prevention efforts.

“Improving the Health Care of Lesbian, Gay, Bisexual and Transgender (LGBT) People: Understanding and Eliminating Health Disparities,” by Kevin L. Ard and Harvey J. Makadon

This brief 2012 report covers the disparities in health services and outcomes seen in the LGBTQ+ community, as well as specific areas of concern in the population. It provides basic education for understanding LGBTQ+ communities and specific concerns within those populations, discusses differences in health care among LGBTQ+ people of color, and lists steps for clinicians and health care providers to take to provide culturally competent care. The report is cited by numerous authors and used as a reference link from many governmental websites about LGBTQ+ health care. See https://www.lgbthealtheducation.org/wp-content/uploads/Improving-the-Health-of-LGBT-People.pdf.

“Lesbian, Gay, Bisexual, and Transgender (LGBT) Health Services in the United States: Origins, Evolution, and Contemporary Landscape,” by Alexander J. Martos, Patrick A. Wilson, and Ilan H. Meyer

Covering the history of community-based health services within the LGBTQ+ community, this article provides insight into the future success or failure of such clinics, which have played a huge role in the field of LGBTQ+ health. The 2017 article in PLoS One (volume 12, number 7; https://doi.org/10.1371/journal.pone.0180544) was funded as part of a long-term study from the National Institutes of Health, the U.S. government’s primary biomedical and public health agency.

Lesbian, Gay, Bisexual, and Transgender Health, from Centers for Disease Control and Prevention

The Centers for Disease Control and Prevention provides a website highlighting health issues among the LGBTQ+ populations (https://www.cdc.gov/lgbthealth/). It links to publications, statistics, data sets, and news from a wide variety of journals, government agencies, and other sources. The CDC is the preeminent U.S. government agency on illness and health.

LGBT Mental Health Syllabus, from Group for the Advancement of Psychiatry

This educational website (http://www.aglp.org/gap/) is for people training in psychology and psychiatry and a source of information for any mental health trainee or practitioner on issues surrounding service to LGBTQ+ individuals. It includes a history of treatment of LGBTQ+ people and primers on transgender and intersex patients.

National LGBT Health Education Center, from Fenway Institute

This website (https://www.lgbthealtheducation.org/) provides free access to numerous publications highlighting health care concerns and issues of the LGBTQ+ population for health care organizations and service providers. Translations of their publications in Spanish and other languages are also available. The Fenway Institute is the world’s largest LGBTQ+ health care, research, and education organization.

“Sexual and Gender Minority Health: What We Know and What Needs to Be Done,” by Kenneth H. Mayer, Judith B. Bradford, Harvey J. Makadon, Ron Stall, Hilary Goldhammer, and Stewart Landers

This 2008 article in the American Journal of Public Health (volume 98, number 6; https://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2007.127811) offers a strong summary of known disparities in health outcomes in the LGBTQ+ health field, research into specific health topics, and a discussion of what directions LGBTQ+ health care needs to move in to meet the needs of clients. The authors, well-known experts in LGBTQ+ health care, are among the authors of the Fenway Guide to Lesbian, Gay, Bisexual, and Transgender Health.

State-Sponsored Homophobia, from International Lesbian, Gay, Bisexual, Trans and Intersex Association

This annual report on the laws criminalizing gender and sexuality around the world also has articles focusing on particular countries and regions. Data sets used to generate the report can be accessed at the report’s website (https://ilga.org/state-sponsored-homophobia-report). The International Lesbian, Gay, Bisexual, Trans and Intersex Association is the world’s foremost LGBTQ+ metaorganization and holds special consultative status with the United Nations Economic and Social Council.

Deep Dive: Books and Film

And the Band Played On: Politics, People, and the AIDS Epidemic, by Randy Shilts

Told from a variety of viewpoints, this book on the AIDS epidemic is an exposé of the failures of the medical establishment, public health, federal government, and research scientists that led to the AIDS crisis in the 1980s. Written by a journalist from San Francisco, it is a foundational text for the examination of how politics plays a role in disease outbreaks, and it exposes both society and government as partners in allowing the deaths of hundreds of thousands of LGBTQ+ people. The book won the American Library Association Stonewall Award (New York: Penguin Books, 1988).

Black LGBT Health in the United States: The Intersection of Race, Gender, and Sexual Orientation, edited by Lourdes Dolores Follins and Jonathan Mathias Lassiter

This book for both health consumers and health workers looks at the intersections of being Black and a same-gender-loving person. Chapters cover sexual identity, women, incarceration, HIV, and much more. Some authors use the cultural signifying term same-gender-loving, rather than the standard Eurocentric term LGB. The book is for anyone interested in intersections of sexual and gender identity with race in the United States and focuses on positive steps for individuals and communities, not on statistics and pathologies. The book received the 2017 Achievement Award from the GLMA: Health Professionals for LGBT Equality (Lanham, MD: Lexington Books, 2016).

Fenway Guide to Lesbian, Gay, Bisexual, and Transgender Health, edited by Harvey J. Makadon, Kenneth H. Mayer, Jennifer Potter, and Hilary Goldhammer

Written by public health professionals, researchers, and clinicians, this book (second edition) provides information on health concerns specific to LGBTQ+ populations such as health care across the life continuum, disease prevention, understanding LGBTQ+ health care needs, health promotion, and gender identity. The Fenway Institute in Boston is a community-based research, education, and care center. It works with LGBTQ+ and HIV-affected populations and is well-respected in the field (Philadelphia: American College of Physicians, 2015).

Gen Silent, directed by Stu Maddux

This documentary is about older LGBTQ+ people who are going back into the closet as they age in order to survive societal discrimination. The film discusses the aging process, depression and loneliness, and problems with assisted living facing older LGBTQ+ people. It includes the stories of a transgender senior and an interracial couple. The film won jury and audience awards for best documentary at the Sacramento Film and Music Festival in 2010 and the audience award for best documentary at the Frameline Film Festival in 2011 (United States: Interrobang Productions).

“Gynecologic Issues for Lesbians,” by Susan R. Johnson

This chapter (https://www.glowm.com/section-view/heading/Gynecologic%20Issues%20for%20Lesbians/item/430#.Yq8MdrnMK3I) is part of an online encyclopedia (GLOWM: Global Library of Women’s Medicine) of women’s health issues containing over four hundred chapters written by medical specialists in their respective fields. The chapter covers issues of special interest to all women who have sex with women, including more than simply gynecologic issues and a variety of life experiences, not simply Eurocentric studies.

Preventive Health Measures for Lesbian and Bisexual Women, by Robin Mathy and Shelly Kerr

This solid discussion of the similarities and differences of preventive health care in women who have sex with women and minorities within that community also includes descriptions of possible outcomes from physicians who treat patients with discrimination and stigmatization (Milton Park, UK: Taylor and Francis, 2007).

Trans Bodies, Trans Selves: A Resource for the Transgender Community, edited by Laura Erickson-Schroth

Written in the style and tone of Our Bodies, Our Selves, this book is a resource for both professionals and nonprofessionals on mental, emotional, and physical health and other topics. It places the trans individual in charge of their life and health. The book received the 2015 Achievement Award from the GLMA: Health Professionals for LGBT Equality, and it was listed as one of the top ten transgender nonfiction books of 2014 by Advocate magazine (Oxford: Oxford University Press, 2014).

Unequal Opportunity: Health Disparities Affecting Gay and Bisexual Men in the United States, edited by Richard J. Wolitski, Ron Stall, and Ronald O. Valdiserri

The health of men who have sex with men (MSM) has numerous disparities with health of the broader male population. The editors feature research and analysis that demonstrates not only general disparities but also those that affect older men, people of color, low-income MSM, and others. A highly recommended book that can serve both researchers and general readers, it contains numerous ideas for health promotion and public health intervention (New York: Oxford University Press, 2008).

Glossary

bisexual. Romantic attraction, sexual attraction, or sexual behavior toward both males and females or toward more than one sex or gender.

degeneracy. Also known as degeneration theory; nineteenth-century theory that homosexuality and bisexuality were akin to criminality, alcoholism, and drug addiction.

gender-affirming hormone therapy. Hormone therapy in which sex hormones and other hormonal medications are administered to transgender or gender-nonconforming individuals to more closely align their secondary sexual characteristics with their gender identity.

gender-affirming surgery. Also known as sex reassignment surgery; surgical procedures by which a transgender person’s physical appearance and function of their existing sexual characteristics are altered to resemble those socially associated with their identified gender.

gender dysphoria. The distress a person can feel because of a mismatch between their gender identity and their sex assigned at birth.

gender expression. A person’s behavior, mannerisms, interests, and appearance that are associated with gender in a particular cultural context, specifically with the categories of femininity or masculinity.

gender identity. The personal sense of one’s gender, which can correlate with assigned sex at birth or can differ from it.

gender nonconformity. A behavior or gender expression by an individual that does not match masculine or feminine gender norms.

hermaphrodite. Biologically, an organism that has complete or partial reproductive organs and produces gametes normally associated with both male and female sexes.

homosexual. A person with a romantic attraction to, sexual attraction to, or sexual behavior with others of the same sex or gender.

incidence. A measure of the probability of occurrence of a given medical condition in a population within a specified period of time.

intersectionality. Overlapping or intersecting social identities, such as race, class, and gender, and related systems of oppression, domination, or discrimination.

intersex. People born with any of several variations in sex characteristics, including chromosomes, gonads, sex hormones, or genitals.

minority stress model. A sociological model, as proposed by Ilan Meyer, explaining why sexual minority individuals, on average, experience higher rates of mental health problems relative to their straight peers.

pansexual. The sexual, romantic, or emotional attraction toward people regardless of their sex or gender identity.

prevalence. The proportion of a particular population affected by a condition (typically a disease or a risk factor such as smoking or seat belt use).

sex reassignment surgery. Also known as gender-affirming surgery; surgical procedures by which a transgender person’s physical appearance and function of their existing sexual characteristics are altered to resemble those socially associated with their identified gender.

sexually transmitted infections. Pathogens that are commonly spread by sexual activity, especially vaginal intercourse, anal sex, and oral sex.

third sex. A concept in which individuals are categorized, either by themselves or by society, as neither man nor woman.